Hospice Patients Alliance: Consumer Advocacy


Many of these books are available online from: Amazon.com, Barnes and Noble or Borders Books.

Clinical Practice Guidelines

Agency for Health Care Research and Quality (AHRQ):
(tel. 800-358-9295)
Management of Cancer Pain
Evidence Reports/Technology Assessments, No. 35; Publication No.: 02-E002
All available free, and excellent for anyone who is concerned about proper pain control. Explains the standards in the medical field for treating terminal cancer pain. Explains how dosages of narcotics are calculated and adjusted.

American College of Physicians-American Society of Internal Medicine - End-of-LifeCare Consensus Panel. Physician's Guide to End of Life Care
A comprehensive manual designed to help professionals learn about and provide good palliative care. The book is divided into three sections containing clearly focused, practical information with illustrative cases. Topics include communications, relationship building, the goals of palliative care; evidence-based approaches to pain, depression, and delirium; intractable suffering; and legal, financial, and quality issues.

Armstrong-Dailey, A. and Zarbock Goltzer, S. (Eds.) 2008.
Hospice Care for Children (3rd Ed.)
New York, NY: Oxford University Press - US
An excellent resource describing how to care for children with terminal illnesses - for hospice professionals.

Bennahum, D. (1996). The historical development of hospice and palliative care. In D. Sheehan, W. Forman (Eds.), Hospice and Palliative Care.
Sudbury, MA: Jones and Bartlett, 1-10.

Bernardi, P. (1998). The Christian art of dying: a response to the assisted suicide movement.Yamauchi Lectures in Religion.
New Orleans, LA: Loyola University (monograph).

Billings, J. (1998). The hospice medicare benefit: an appraisal at 15 years.
Journal of Palliative Medicine, 1(2), 123-127.

Brown, E., Warr, B., Shribman, S. (2007). Supporting the Child and the Family in Pediatric Palliative Care.
Philadelphia, PA; Jessica Kingsley Publishers

Bruera, E., & Lawlor, P. (1998). Defining Palliative Care Interventions.
Journal of Palliative Care 14(2), 23-24.

Brunelli, C., et. al. (1998) Quality-of-life evaluation: when do terminal cancer patients and health care providers agree?
Journal of Pain and Symptom Management 15(3), 151-158.

Chevlen, E, MD and Smith, W.J. (2002). Power Over Pain
How To Get the Pain Control You Need
Steubenville, OH: International Task Force publications.
Explains in plain language the intricacies of achieving excellent pain control in end-of-life as well as chronic and acute pain situations. This book belongs in the hands of anyone who is confronting pain, as a patient or health care professional. Available from Poweroverpain.com.

Christakis, N. & Escarce, J. (1996).
Survival of medicare patients after enrollment in hospice programs.
The New England Journal of Medicine, 335(3), 172-202.

Christian Medical & Dental Associations (CMDA)
No Mercy
Bristol, TN: Christian Medical & Dental Associations.
An important DVD revealing the dark side of physician-assisted suicide and euthanasia, which is not "merciful" at all. Purchase online.

Committee on Palliative and End-of-Life Care for Children and Their Families (Author), (2003)
When Children Die: Improving Palliative and End-of-Life Care for Children and Their Families
Field, M., Behrman, R., (Eds.), (2003). Washington, DC: National Academies Press.

Connor, S, (2009). Hospice and Palliative Care: The Essential Guide (2nd ed.)
New York, NY: Routledge.

Craddock, Dr. J.E. and Ford, RN, Cheryl (2005).
Our Fight4Terri Victoria, BC, Canada, Trafford Publishing
Our Fight4Terri reveals the facts underlying this tragic case as well as Terri Schindler Schiavo's actual condition. Reproducing actual sworn affidavits from those who examined her, cared for her and other original court documents, the book leaves no doubt about what really happened. Reminiscent of the Salem witch trials, this case stands as one of the single most unjust and misrepresented executions of our time; this book shows conclusively why.

Though thousands of superficial and supposedly "authoritative" articles were written by uninformed lawyers, doctors and others, virtually no major news outlet investigated or reported the unvarnished truth of Terri's responsiveness and disability. No major news organization reported on the agenda being played out to make hospice the place to execute the unwanted disabled. Media bias in favor of euthanasia and hastening the death of those with severe disabilities resulted in a total censorship of the facts and agenda underlying this case. Our Fight4Terri reveals the steps leading to Terri's disability itself, the illegal placement of a nonterminal patient into hospice and includes exhaustive original source documents. If you finally want to know the truth, Our Fight4Terri brings the facts to you with clarity! Almost everything else you read in the major media was a lie! They never reported the broken bones Terri had, the posterior rib fractures, the fracture of the femur, the permanent neck injury, and most importantly, Terri never had any "cardiac arrest" or heart attack or eating disorder! You can find much information about Terri Schiavo also at the documents we have online here from the Affidavits of those who cared for Terri, physicians who examined her, etc.

Doyle, D., Hanks, G., Cherny, N., Calman, K., (Eds.), (2003). Oxford Textbook of Palliative Medicine (3rd ed.)
New York, NY: Oxford University Press.

Dyck, A. (2002). Life's Worth: The Case Against Assisted Suicide (Critical Issues in Bioethics Series)
Grand Rapids, MI: Wm. B. Eerdmans Publishing Co..

Ferrell, B., Coyle, N. [editors] (2010). Oxford Textbook of Palliative Nursing
New York, NY: Oxford University Press

Finn, L. (1985). The development of hospice in America. The Hospice Handbook
Rockland, MD: Aspen Publications.

Fins, J., et. al. (1999). End-of-life decision-making in the hospital: current practice and future prospects. Journal of Pain and Symptom Management 17(1), 6-15.

Fox, E., et. al. (1999). Evaluation of prognostic criteria for determining hospice eligibility in patients with advanced lung, heart or liver disease.
Journal of American Medical Association 282(17) 1638-1645.

Gallaher-Allred, C.,Amenta, M., (Eds.) (1997). Nutrition and Hydration in Hospice Care: Needs, Strategies, Ethics
(The Hospice Journal , Vol 9, No 2-3)
New York, NY. Routledge

Gilbert, R. & Sims, D. Finding your Way After Your Parent Dies
The experience of losing a parent in death is almost universal and yet many who feel this loss for the first time are surprised at how painful it can be. Even those well into adulthood are often taken aback by the deep sense of loneliness, the sense of being orphaned that the death of a mother or father can bring. In this book, Rev Richark Gilbert has created a compassionate guide for those struggling with the loss of a parent. Bringing many years of experience in bereavement counseling, Gilbert sketches out some of the issues that arise in the wake of a parent's death and offers practical suggestions for navigating these difficulties. Available at Amazon.com

Goldman, A. (Ed.) (1994). Care of the Dying Child
London, U.K.: The Hospital for Sick Children.
Excellent reference for hospice physicians and other professionals.

Gomez, C., MD. Regulating Death - Euthanasia and the Case of the Netherlands
Dr. Gomez presents shocking evidence that euthanasia in the Netherlands is truly out of control and that safeguards for the so-called proper implementation of medical killing are routinely violated, and that the courts and physician review have not stopped or even condemned involuntary euthanasia cases. On the contrary, physicians in the Netherlands are encouraged to provide euthanasia (which cuts costs for the Dutch socialized medicine budget) and review of violations of the safeguards are entrusted to physicians who favor the option of euthanasia. Dr. Gomez explains that patient "willingness" to be euthanized is not always voluntary, but rather may be a result of pressures from the physician or a family feeling burdened by the patient's need for ongoing care.

Griffie, J., et. al. (1999). Integrating palliative care into daily practice: a nursing perspective.
Journal of Palliative Medicine 2(1), 65-73.

Hendin, H., M.D. (1997). Seduced by Death - Doctors, Patients, and the Dutch Cure
New York, NY: W.W. Norton & Company.
Dr. Hendin is Professor of Psychiatry at New York Medical College and Executive Director of the Aerican Foundation for Suicide Prevention, TOLL-FREE: 888-333-AFSP, PHONE: 212-363-3500, http://www.afsp.org
Dr. Hendin has presented the results of exhaustive research and interviews about euthanasia (medical killing) in the Netherlands and its impact on patient rights. He clearly shows how patients are often pressured into euthanasia and how euthanasia may be performed on patients who have not given permission, were not informed of the intention to euthanize them, or who were depressed and may have decided against euthanasia if they had been offered psychiatric counseling. Euthanasia represents one of the greatest threats to real hospice care in the world. Where euthanasia flourishes, education in pain management and hospice declines.

Ignatoff, A., M.S.. (2005). Remembering Terri Schiavo: Reflections of a Health Care Warrior
Morrisville, NC: LuLu Press.
This is a memorial to Terri Schiavo. It is an analysis of her life and death from a medical sociological perspective. Her case is very important because it will have an impact on the disabled population and may lead to euthanasia. It is important for people in the nursing home and hospice industry to be familiar with this case.

Irish, D, Lundquist, L, Nelson, V. (1993). Ethnic Variations in Dying, Death and Grief
Bristol, PA: Hemisphere Press.

Kubler-Ross, E., M.D. (1975) Death: The Final Stage of Growth
Englewood Cliffs, NJ

Kubler-Ross, E., M.D. (1997) Living with Death and Dying
New York, NY: Scribner (Simon & Schuster).

Kubler-Ross, E., M.D. (1997 edition). On Death and Dying
New York, NY: Scribner (Simon & Schuster).
The classic reference on death and the dying process. Well-accepted and well-researched conclusions. One of the most important pivotal works with world-wide impact. Written by one of the key researchers of hospice.

Kubler-Ross, E., M.D. (2007) On Grief and Grieving: Finding the Meaning of Grief Through the Five Stages of Loss
New York, NY: Scribner (Simon & Schuster).

Kuebler, K:

    Kuebler , K. (2017). Integration of Palliative Care in Chronic Conditions: An Interdisciplinary Approach , Published by Oncology Nursing Association.

    Kuebler , K. (2009). Taking Charge of My Cancer Pain Management: All I Need to Know, Patient Education Question and Answer textbook " written for Meda Pharmaceuticals and published by Zen Productions (in press)

    Kuebler , K., Buschel , P., Balkstrac, C (2008) Differentiating COPD from Asthma Journal of the American Academy of Nurse Practitioners 20:445-454.

    Esper, P., & Kuebler, K (Eds). (2008) Palliative Practices from A-Z for the Bedside Clinician 2nd ed.
    https://ebooks.ons.org/book/palliative-practices-z-bedside-clinician-second-edition, Pittsburg, PA: ONS Publishing Services

    Kuebler, K., Heidrich, D., & Esper, P. (Eds). (2007). The Palliative and End-of-Life Care: Clinical Practice Guidelines St. Louis, MO: Elsevier Mosby

    Kuebler, K., Heidrich, D., & Vena, C. (2005). Delirium, Agitation and Confusion In: B. Ferrell & N. Coyle (Eds) Textbook of Palliative Care Nursing New York, NY: Oxford University Publishers.

    Kuebler , K., & Esper, P. (2005). Palliative Care. Clinical Journal of Oncology Nursing 9(5), 617-620.

    Kuebler, K., Davis. M., & Moore, C. (Eds). (2005). Palliative Practices: An Interdisciplinary Approach. St Louis, MO: Elsevier Mosby.

    Vena, C., Kuebler, K., & Schrader, S. (2005). The dying process. In: K. Kuebler, M. Davis & C. Moore ( Eds). Palliative Practices: An Interdisciplinary Approach. St Louis, MO: Elsevier Mosby 335-368.

    Kuebler, K., (2005). Legal issues influencing cancer care. In: S. Mahon (Ed). Core Curriculum for Oncology Nursing 4th ed. St. Louis, MO: Elsevier Saunders. 308-312.

    Guest Editor: Seminars in Oncology Nursing, (2005) journal dedicated to palliative care for the oncology patient. Selected paper topics, invited contributors and edited final format. Introduction. Seminars in Oncology Nursing 21(1), 1.

    Kuebler , K., J. Lynn & J. Von Rohen (2005) Perspectives in Palliative Care. Seminars in Oncology Nursing 21(1), 2-10.

    Rutledge, D., & Kuebler, K. (2005). Applying Evidence to Palliative Care. Seminars in Oncology Nursing 21(1), 36-43.

    Kuebler , K., (2005) Palliative and Hospice Care Issues and Concepts in the Ambulatory Care Setting. In: Buchsel & Yarbro (Eds). Oncology Nursing in the Ambulatory Setting: Issues and Models of Care. Sudbury, MA :Jones and Bartlett 263-275.

    Kuebler, K., & Heidrich, D., (2004) Perspectives in Palliative Care. In: Black & Hawks (Eds). Medical Surgical Nursing: Clinical Management for Positive Outcomes 7th Edition. Pittsburgh, PA: Elseiver Science 487-500.

    Kuebler, K., & Varga , J., (2003) Why there is no Cookbook Approach to Palliative Care: Implications of the P450 Enzyme System Clinical Journal of Oncology Nursing 7(5); 569-571.

    Kuebler, K., (2003) The American Advanced Practice Palliative Care Nurse Journal of Palliative Medicine 6(5); 707-714.

    Kuebler, K., (2003) Analgesic Prescribing style='font-weight:normal;font-style:>American Journal of Nursing 103(1), 16 (letter to the editor).

    Kuebler, K., & Moore, C., (2002) The Michigan Advanced Practice Nursing Palliative Care Project Journal of Palliative Medicine 5(5), 753-754. ( abstract)

    Kuebler, K., (2002) The American Advanced Practice Nurse in Palliative Care The International Association of Hospice and Palliative Care " electronic newsletter (September).

    Kuebler, K., (2002) Care in the Last Days of Life The Third International Seminar on Palliative Medicine, Sichuan. Chengdu, China (AIMS/WHO)

    Kuebler, K., (2002) Grief and Bereavement The Third International Seminar on Palliative Medicine, Sichuan. Chengdu, China (AIMS/WHO)

    Kuebler, K., Moore, C., (2002) The Michigan Advanced Practice Palliative Care Self-Training Manual Lansing: Michigan Department of Community Health.

    Kuebler, K., Berry, P., & Heidrich, D., (Eds). (2002) End-of-Life Care Clinical Practice Guidelines Philadelphia: W.B. Saunders Co.

    Kuebler, K., Esper, P., (Eds). (2002) Palliative Practices from A-Z for the Bedside Clinician Pittsburgh: Oncology Nursing Press Inc.

    Kuebler , K., (2001). Palliative Nursing Practice for the Patient with End Stage Renal Failure. Urologic Nursing 21(3), 167-178.

    Kuebler, K., Heidrich, D., (2000) Perspectives on End-of-Life Care in: Black, Hawks and Keene (Eds). Medical Surgical Nursing 6th Philadelphia: W.B. Saunders Co.

    Kuebler, K., English, N., & Heidrich, D., (2000) Confusion, Agitation, Restlessness and Anxiety in: Ferrell, B., & Coyle, N., ( Eds). Textbook of Palliative Nursing New York: Oxford University Press

    Kuebler, K., & Bruera, E., (2000) Interactive Collaborative Consultation Model in End-of-Life Care. Journal of Pain and Symptom Management Vol. 20(3), 202-209

    Campbell, M., Geller, S., Smellie-Decker, M., & Kuebler, K., (2000) Symptom Management Strategies for Dying Patients (Continuing Education) Michigan Nurse, Michigan Nurses Association " January

    Campbell, M., Geller, S., Smellie-Decker, M., & Kuebler, K., (2000) Symptom Management Strategies for Dying Patients (cont) Michigan Nurse, Michigan Nurses Association " February.

    Campbell, M., Geller, S., Smellie-Decker, M., & Kuebler, K., (2000) Grief: Strategies For People Anticipating or Recovering From a Loss (Continuing Education) Michigan Nurse, Michigan Nurses Association " May.

    Kuebler, K., (2000) Palliative Care APN's: Improving Access and Care in Rural Settings Michigan Nurse " Michigan Nurses Association June.

    Kuebler, K., (1999) Nurses have a responsibility to learn more About End-of-Life Care, Letter to the Editor Oncology Nursing Forum Vol 26 No 1, 17

    Kuebler, K., (1998) Physician "Aided Suicide Stashes Death in Closet: Normal Act of Dying should be Healthy, Normal Experience Letter to the Editor " The Lansing State Journal, September 13.

    Kuebler, K., (1998) Research Utilization for the Practicing Bedside Nurse in End-of-Life Care Fanfare " Hospice and Palliative Nurses Association Vol 12 No 2.

    Kuebler , K., & Bruera, E., (1998) Interactive Internet End-of-Life Care Journal of Palliative Care (abstract) Vol 14 No 3.

Kinzbrunner, B. (1998). Hospice: 15 years and beyond in the care of the dying.
Journal of Palliative Medicine, 1(2), 127-137.

Kuhl, David, MD (2002).
What Dying People Want
Practical Wisdom for the End of Life
Cambridge, MA: Public Affairs - Perseus Books Group
Written with great sensitivity, compassion and understanding, Doctor Kuhl immediately pulls one into the realities and inner thoughts confronting both patient and health care provider when dealing with terminal illnesses. This book provides numerous stories from the terminally ill and shares what can be learned from each of them. Should be read by not only every terminally ill patient and their families, but also by every health care professional in the field! It reveals how to relate in a way that honors the patient and the great traditions of hospice and palliative care. Must reading for anyone interested in end-of-life care! Available from Amazon.com.

Lattanzi-Licht, M., Mahoney, J., & Miller, G. (1998). The Hospice Choice: In Pursuit of a peaceful Death.
New York, NY: Simon & Schuster.

Lynn, J. (1997). An 88-year-old woman facing the end of life.
Journal of the American Medical Association, 227(20), 1633-1640.

Lynn, J. (1998). Complaints about hospice: growing up or going wrong?
ABCD Exchange, 1(9), 2-7.

MacDonald, N., (1999). Palliative Medicine: A Case Based Manual.
New York, NY: Oxford University Press

Mahoney, J. (1998). The medicare hospice benefit - 15 years of success.
Journal of Palliative Medicine, 1(2), 139-146.

Marker, R, PhD (1993). Deadly Compassion
New York NY: William Morrow & Company.
This is the book revealing the inside story of the euthanasia movement, what the real agenda is, and how dangerous the pro-euthanasia forces are to public safety. Professor Marker is the founder of the International Anti-Euthanasia Task Force and is known internationally as an advocate for patients' rights and the efforts to stop euthanasia. If you have any concerns at all about the ethics and politics involved in the euthanasia and "physician-assisted suicide" debate, you MUST read this book! Learn how one of the co-founders of the Hemlock Society, Ann Humphry, realized that her life's work to promote euthanasia was a mistake and the price she paid for her involvement with the pro-euthanasia advocates. Find out how little "compassion" the pro-euthanasia forces really have. Find out why pro-euthanasia advocates may end up destroying the compassionate administration of real quality hospice care. You can order Deadly Compassion from the Patients Rights Council.

Martinez, J. (1996). The Interdisciplinary Team. In: D. Sheehan & W. Forman (Eds). Hospice and Palliative Care: Concepts and Practice.
Boston, MA: Jones and Bartlett Publishers, 21-31.

National Hospice and Palliative Care Organization
  • Medical Guidelines for Determining Prognosis in selected Non-Cancer Diseases
    See online version.
  • Standards of a Hospice Program of Care
  • Hospice Under Medicare (booklet)
  • Compendium of Pediatric Palliative Care
    A comprehensive reference on pediatric palliative care.
The National Hospice and Palliative Care Organization (formerly National Hospice Organization) publishes numerous books, booklets and brochures of interest to all hospice professionals and the general public.

Oliver, Rev. S, (1998). What the Dying Teach Us ... Lessons on Living
Binghamton, NY: The Haworth Pastoral Press.
From an experienced hospice minister comes a revelation of the heart of the Hospice mission. Written from the heart, this book conveys the inner experience of hospice care, death and dying and questions about the meaning of life, death and the Spirit. Read along and get back in touch with what is really going on during the most intimate moments of the dying process as well as life itself. Distributed by Hospice Patients Alliance. You can purchase it online at Amazon.com now.

Panzer, R. (1999). The Hospice Patients Alliance Family Guide to Hospice (What No Hospice Will Tell You!)
Rockford, MI: Hospice Patients Alliance Press.
A hands-on guide to obtaining the best care for the terminally ill, with tips on bedside care and problem resolution. The only consumer-oriented guide to hospice care written from the patient-family perspective which lists all the federal standards of care for hospice care and explains what services you are entitled to receive in hospice. Covering every major concern families and patients have, the Guide to Hospice E-Book is available online.

Picardie, R (1998). Before I Say Goodbye
New York, NY: Henry Holt and Company.
A revealing book written by a terminally ill woman who was an acclaimed journalist and writer who died of breast cancer at the age of 33 in England. Excerpts from her personal letters share some of her innermost thoughts. This account is all at once a very sad, funny, witty and extremely relevant book. Ruth Picardie wanted others to know about her experience in the dying process, even writing about her decline in the English "Observer Life" magazine before her death in 1997.

Ray, K. I'm Here to Help: A Guide for Caregivers, Hospice Workers, and Volunteers
This practical, caring, step-by-step guide is a standard text for the millions of professionals who are committed to taking care of those suffering from chronic or terminal illness and their families. I'm Here to Help imparts the skills and techniques necessary to facilitate communication in a succinct style and provides tips on how to initiate painful discussions, listen effectively, manage defensiveness in both the family and patient, and other vital issues. Available at Amazon.com.

Saunders, C., & Baines, M. (1989). Living With Dying: The Management of Terminal Disease (2nd ed.).
New York, NY: Oxford University Press.

Saunders, C., Summers, D., & Teller, N. (1981). Hospice: The Living Idea.
London, England: Edward Arnold.

Scott, G. (1995). Challenging conventional roles in palliative care.
Nursing Times, 91(3), 38-39.

Sheehan, D, Forman, W (2003). Hospice & Palliative Care: Concepts & Practice (2nd ed.)
Boston, MA: Jones & Bartlett.

Singh, K The Grace In Dying: How We Are Transformed Spiritually as We Die
New York, NY; Harper One
"Kathleen Dowling Singh opens our eyes to the spiritual aspects of dying, as Sherwin Nuland and Elisabeth Kubler-Ross did for the physical and psychological. Her message...can offer reassurance throughout life." - (review by Steven A. Schroeder, M.D., president, The Robert Wood Johnson Foundation).

Smith, W (2001). Culture of Death: The Assault on Medical Ethics in America
Encounter Books.
An attorney's searing analysis and expose of the alarming trend in hospice and health care in general to de-sanctify the value of human life and to intentionally withhold needed treatments, perform euthanasia, harvest organs from the dying, fail to attempt to help those who could recover from injuries or illness. A must read book for anyone concerned about the medical killing of patients throughout the USA.

Steinhauser, K., et. al. (2000). Factors considered important at the end of life by patients, family, physicians, and other care providers.
Journal of the American Medical Association 284(19), 2476-2482.

Teno, J., & Coppola, K. (1999). For every numerator, you need a denominator: a simple statement but key to measuring quality in care of the "dying".
Journal of Pain and Symptom Management, 17(2), 109-113.

Tobin, D., (1999). Peaceful Dying.
New York, NY: HarperCollins Publishers.

Vogt, C. P., (2004). Patience, Compassion, Hope, And The Christian Art Of Dying Well.
Lanham, MD: Rowman & Littlefield Publishers.
Patience, Compassion, Hope, and the Christian Art of Dying Well combines a strong pastoral sensibility with the best of contemporary scholarship in Christian ethics to answer the pressing questions of how Christians should respond to suffering and death. By mining the rich tradition of virtue ethics, Christopher Vogt uses the virtues of patience, compassion, and hope as a framework for specifying the shape of a good death, and for naming the practices Christians should develop to live well and die well. .... Through a careful analysis of Luke's passion narrative, Vogt uses Jesus as the primary model for being patient in the face of death and for dying well. Christopher P. Vogt is assistant professor of theology and religious studies at St. John's University, New York

Walsh, D. (1998). The medicare hospice benefit: A critique from palliative medicine.
Journal of Palliative Medicine, 1(2), 147-149.

Wolfe, M. (2003). Menya, an end of life story.
Toronto, Canada; Grubstreet Books
This is a heart-wrenching but heart-warming story; a moving account about the author's 36 year old daughter's battle with inflammatory breast cancer and her final days receiving the very best of care at Trinity Home Hospice in Toronto, Canada.   ---   And from the foreward: " ... death may not be preventable, but it can be softened by acts of gentle kindness. It is not only the very sick person who is the recipient of the spiritual peace which intermittently accompanies skilled and generous palliative care. Care-givers find themselves deeply and forever changed..."    email: Grubstreetbooks

Yates, P. (2005). The Gift of More: Lessons of Faith and Love from a Life Cut Short
Grand Haven, MI; Faithwalk Publishing
Yates documents how her family negotiated the minefields of the medical system, explored alternative medicines, encountered the paranormal, investigated the medical use of marijuana, dealt with the harsh realities of hospice care, and discovered a wealth of meaning previously hidden to them. Honest and heart-wrenching The Gift of More conveys what Sean went through during his last year, and how his life and death affected those around him – his siblings, parents, grandparents, friends, and co-workers.

In addition to recounting her son's journey, she also relates how her dormant faith was ignited during a difficult night when she prayed to the Virgin Mary, the definitive symbol of motherhood, for a sign. This mystical experience -- she awoke to find mysterious, elaborate markings on her right foot – acted as a catalyst for the spiritual growth of both her family and Sean, “the ultimate agnostic.” And in due course it led her, in the wake of her loss, to find encouragement and hope.

If you have questions about hospice, we hope that you will take the time to visit the hundreds of pages at our website, read our Guide to Hospice Care and visit our resources and links section (with hundreds of vital resources listed)

Hospice Patients Alliance affirms that all human life is inherently valuable and that the role of hospice nurses, physicians and all other staff is to alleviate suffering and provide comfort for the sick and dying without sanctioning or assisting their suicide. A death with dignity allows for a natural death in its own time, while doing everything possible to assure relief from distressing symptoms. Hospice Patients Alliance works hard to promote quality hospice care throughout the USA. If you would like to support our mission, we hope you will consider supporting our mission through a donation. Hospice Patients Alliance is a 501(c)(3) charitable nonprofit corporation and your donations are deductible to the full extent allowed by law.

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