Hospice Patients Alliance: Consumer Advocacy


CHILDREN'S RESOURCES



  • ALI & DAD'S ARMY
    Ali & Dad's Army funding pediatric cancer research

    We hope some of you will consider enlisting in Ali & Dad's Army and help kids fight cancer. All proceeds will benefit the University of Massachusetts Cancer Center through the Ali Pierce Endowment Fund for pediatrics cancer research and care at UMass."

  • AMERICAN ACADEMY OF PEDIATRICS
    www.aap.org/policy/re0007.html

    Palliative Care for children: Position statement from The American Academy of Pediatrics (AAP) - "ABSTRACT. This statement presents an integrated model for providing palliative care for children living with a life-threatening or terminal condition. Advice on the development of a palliative care plan and on working with parents and children is also provided. Barriers to the provision of effective pediatric palliative care and potential solutions are identified. The American Academy of Pediatrics recommends the development and broad availability of pediatric palliative care services based on child-specific guidelines and standards. Such services will require widely distributed and effective palliative care education of pediatric health care professionals."

  • CHILDREN'S HOSPICE INTERNATIONAL
    www.chionline.org

    Children's Hospice International (CHI) is a non-profit organization which provides a network of support and care for children with life-threatening conditions and their families. The hospice approach for children is a team effort that provides medical, psychological, social and spiritual expertise and information in the United States and abroad.

    CHI is committed to the concept of care called "hospice." It recognizes the right and need for children and their families to choose health care and support whether in their own home, hospital, or hospice care facility.

  • COUNSELING FOR LOSS & LIFE CHANGES
    www.counselingforloss.com

    A grief support site for those bereaved suffering the loss of a loved one.
    There is an informative children's corner.

  • FERNSIDE CENTER FOR GRIEVING CHILDREN
    http://www.fernside.org/kids

    A center for grieving children devoted to kids. Information, activities.

  • FREE TEENS
    www.freeteens.org

    Free Teens is a nonprofit, reality based, abstince focused sex-education program for teenagers used in 38 states around the country. This is an effective abstinence program that helps to prevent teen pregnancy and helps to prevent STD and AIDS deaths.

    Research shows that sex-education programs that encourage proper use of condoms do NOT achieve the goal of preventing pregnancy, STDs and AIDS transmission. Only sexual abstinence until marriage is a 100% sure way to prevent these problems. This program (and others like it) helps teens improve their self-esteem, have healthy interpersonal relationships, achieve their goals and learn life skills they will take with them throughout their lives. A valuable program working to benefit our society.

  • GRIEVINGCHILD.ORG
    www.grievingchild.org/

    The Dougy Center, the first center in the US to provide peer support groups for grieving children, offers excellent resources for adults and children.

  • MAKE-A-WISH FOUNDATION
    http://www.makeawish.org/kids

    For more than 20 years the Make-A-Wish Foundation has been helping children with terminal or life-threatening illnesses realize their dearest wishes. From trips to Hawaii or Disney World to riding a horse or becoming a "police officer for a day" if you know a child with a terminal illness, who has a special dream or wish, try contacting the Make-A-Wish Foundation for help.

  • NATIONAL HOSPICE AND PALLIATIVE CARE ORGANIZATION
    Compendium of Pediatric Palliative Care
    www.nhpco.org

    A comprehensive reference on pediatric palliative care.
    The National Hospice and Palliative Care Organization (formerly National Hospice Organization) publishes numerous books, booklets and brochures of interest to all hospice professionals and the general public. The Compendium is published 2001 and is sure to be on the desk of every pediatric hospice department head.

  • PAIN EDUCATION FOR PATIENTS, FAMILIES AND NURSES
    www.nursing.uiowa.edu/sites/pedspain/index.htm

    An excellent resource for information about treating pain such as cancer pain, especially in children, this site is quite helpful, and is still being updated.

  • SAFE CROSSINGS
    www.providence.org/ safecrossings/documents/new_home.htm

    Nonprofit hospice program that assists children with terminal illness or the death of a loved one. Offers resources for children, parents, and professionals: short articles, activities, exercises, suggestions for coping with difficult feelings on holidays and other special occasions, links to related sites, and separate bibliographies for each group.

  • TAG: TEEN AGE GRIEF, INC.
    http://www.smartlink.net/~tag/index.html

    TAG offers educational and support programs for grieving teens and children. TAG conducts training programs for individuals and professionals in educational, health care, social service, law enforcement, and other settings. An informative site with many links.



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